Resources

Resources 2017-04-19T00:01:20+00:00

National Organizations

-National Down Syndrome Congress (website) promotes the interests of people with Ds and their families through advocacy, public awareness, and information.

-National Down Syndrome Society (website) is the national advocate for the value, acceptance and inclusion of people with Ds.

-Down Syndrome Health Issues (website) presents medical essays and information about Ds for parents and professionals.

-Down Syndrome Educational International (website) works with parents and teachers worldwide to improve educational outcomes for children with Ds through scientific research, evidence-based resources and expert services.

-My Child Without Limits (website) provides resources for parents with children who have developmental delays.

-National Center for Learning Disabilities (website) provides an online resource for parents and educators on learning disabilities and related disorders.

Local Organizations and Information

-2-1-1 Tennessee (website) One of the easiest ways to get help is by dialing 2-1-1, Tennessee’s community services help line. When you call, you’ll get a real person, one who is trained to help you sort out your needs, and then give you phone numbers and addresses of the closest places where you can get help. 2-1-1 has a database of more than 10,000 health and human services programs, cross-referenced for all sorts of keywords. So don’t worry if you don’t know what type of service you need or the name of an agency — just talk with the specialist at the other end of the line and she or he can help you find what you need.

-Exceptional Orchestra (website) is designed for children at the elementary school level. The rehearsal process is activity based. Participants will create their own musical instruments, practice a movement routine, and learn about musical notation.

-Disability Law & Advocacy Center of Tennessee (DLAC) (website) is a nonprofit legal services organization that provides FREE services to protect the rights of Tennesseans with disabilities. DLAC advocates for the rights of Tennesseans with disabilities to ensure they have an equal opportunity to be productive and respected members of our society.

-Tennessee Early Intervention (website) is a voluntary educational program for families with children birth through age three with disabilities or developmental delays.

-A.S.K. (website) is a community group that gathers to provide education, information & support to families, caregivers and anyone touched by a child or family with special needs.

-The Arc (website) resources for people with intellectual and developmental disabilities.

-Turning Pages Together (website) supports literacy and social engagement.

-Medicaid Waiver (pdf) a family guide to Medicaid waiver services.

-Step-TN (website) provides support and training for exceptional parents in Tennessee.

-Grace Fellowship Church Access (website) exists to engage individuals with special needs and their families into the life of the church. ACCESS partners each child or young adult with a “buddy” who walks beside him or her through a Sunday morning.

-Access Stem Home (website) is an alliance for students with disabilities in science, technology, engineering, and math.

-TASK (website) is an independent non-profit agency serving the special needs’ citizens of Tazewell County for over 25 years.

Ainsley’s Angels in East Tennessee (website) provides athletic ride-along programs for people of all ages who would not be able to experience endurance events on their own.

Nutrition

-Down Syndrome Nutrition (website) provides tools to help maintain healthy diets for children with special needs.

Research

-Down Syndrome Center (website) has a mission to improve the lives of individuals with Down syndrome and their families by combining excellence in research, clinical services, and education. Please explore this web site to learn about more about our mission, the progress we are making to achieve that mission, and clinical services that we provide.

Services/Products/Apps

-Eyedentity Label (website) provides temporary tattoos custom made to protect children, the mentally impaired, senior citizens or anyone who may require assistance with recall on emergency data.

-PAL Protect and Locate (website) provides locator wrist watches.

-Project Lifesaver (website) provides a timely response to save lives and reduce potential injury for adults and children who wander due to medical conditions or disorders.

-River’s Way (website) growth through experiential and adventure based programming for youth of all abilities.

-FBI Child ID App (website) provides a convenient place to electronically store photos and vital information about your children so that it’s literally right at hand if you need it.

-Sky Nanny (website) helps take the fear away from losing your child!!!

-TV Teacher (website) provides DVDs and now an iPad® app that teaches handwriting using a multi-sensory approach of visual demonstrations and rhythmic chants. Look here for their free app on the iPad®.

-Special Words (website) teaches children to recognize written and spoken words, and encourages their speech development, using pictures and sounds. Play alongside your child at a pace suited to their ability.

-See and Learn (website) resources offer practical guidance and activities to help parents, teachers and therapists provide effective early intervention and education for children with Down syndrome and other children with similar learning needs.

-Special iApps (website) is a non-profit social enterprise, dedicated to helping children learn. We develop apps for the Apple® iPad®, iPhone® and iPod touch®, and for Android™ tablets and smartphones. All our apps are developed in close co-operation with education professionals, parents and children, and are designed to be suitable for typically developing children and those with learning difficulties or poor fine motor control.

Books (a number of these books are available for review by request)

-Woodbine House (website) provides a collection of books concerning children with Ds and other special needs.

-Imagination Library (website) promotes literacy by providing free books for children from birth to five years.

-Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges by Dennis McGuire

-The Guide to Good Health for Teens & Adults with Down Syndrome by Brian Chicoine and Dennis McGuire

-Managing My Money: Banking and Budgeting Basics by Natalie Hale

-Teaching Children with Down Syndrome about their Bodies, Boundaries, and Sexuality (Topics in Down Syndrome) by Terri Couwenhoven

-Down Syndrome Parenting 101: Must-Have Advice for Making Your Life Easier by Natalie Hale

-The Girls’ Guide to Growing Up: Choices & Changes in the Tween Years by Terri Couwenhoven

-The Boys’ Guide to Growing Up: Choices and Changes During Puberty by Terri Couwenhoven

Social Media

-Friends Facebook (website) provides information about news and events for the Friends support group.

-Special stuff for special kids (website) provides links to community resources.

-Alphabet Children of Johnson City/Washington Co. Tennessee (website) provides information about news and events for children with learning disabilities.

“Children are our most valuable natural resource.”
― Herbert Hoover